Update on Sam

Sam has now had three weeks of treatment and so far he seems to be responding ok. Before the treatment began Sam would not walk up the stairs himself at all. He would either wait to be carried or would just not go up to his room. Since his treatment began we've been keeping track of the number of times he goes up the stairs on his own and at his own initiation. That number has been steadily increasing week by week, which is encouraging. Even now, when he does climb the stairs, it is a whole body effort for him. Both hands holding the railing and pulling as hard as he can while his legs do all they can do to lift his body. And I think they really don't know if the perceived improvement is due to increased energy level or due to the medication actually minimizing the affects of the active disease on his muscles. Still a very frustrating process with so many questions and so few answers. But it is something. Something is happening. And that's good.